An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
Sunday, January 11, 2009
A weekend home
I spent a weekend at home, we had a little Christmas because now I'm a mum I have to share her around. It was easier this time because sadly I'm getting used to seeing my dad that way. He seems so vulnerable and at the same time unwilling to give up now. He won't let us help him with some things. However he does at others. He phoned me, he was upstairs I was down. He didn't speak on the phone and this panicked me. When I got to him he wanted me to do up his shirt and tie his shoe laces. I did, of course and was pleased to. These moments fill me with joy and dread and remind me of just how important the love we have for each other has been and will be. I am so proud to be his daughter. But I've no idea how my sister and mum cope 24/7