Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label Email. Show all posts

Showing posts with label Email. Show all posts

Saturday, March 31, 2007

Email to people

Prayers and positive thoughts needed. Hey hey Some not so good news today. Dad has got a letter, it looks like it is a brain tumou...

Sunday, February 25, 2007

e-mail about dad

hi all just to let you know the latest, dad had an appointment with prof C tonight re balance and general wobbliness. The good news is prof ...

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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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