Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label London. Show all posts

Showing posts with label London. Show all posts

Sunday, July 15, 2018

My London

I'm in my London. My London smells, it's crowded and busy, it's got lots of people, it's got fashion and noise. It's got...

Saturday, December 23, 2017

My boys

How do you write about them? My boys, the ones who got mixed up in it all. One definitely missing and one definitely dead. My boys. I wis...

Friday, May 12, 2017

Places and the past

I'm in Angel Travelling home in an uber. This place holds lots of happy memories and many bus journeys. It seems to have a draw.

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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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