Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label Malawi. Show all posts
Showing posts with label Malawi. Show all posts
Saturday, May 19, 2018

Things are different... I shall add as we go along

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A question I hear in my head often is, why did we come here. The truth is always:  "many reasons." Each one of those reasons woul...
Wednesday, May 09, 2018

What makes me happy?

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On Monday I went to first Zumba class. Unlike my ridiculously fit and capable friend, who bounced the whole way through, I look it fairly ea...
Wednesday, March 28, 2018

I miss doing food shopping online

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Silly but I'm missing the comfort of my habits this week. I'm missing my ability to get what I want and need. I can't just pop...
Friday, February 16, 2018

Start of the half term

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Which means I'm half way through my first year here and it's gone so quickly. It feels very normal too. I've had a few things t...
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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