Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label VHL; conversation; other blogs. Show all posts

Showing posts with label VHL; conversation; other blogs. Show all posts

Saturday, March 19, 2016

The difficult week

This week every year is hard, the hump in the road that I know I have to get over. It was even harder this year, I woke up on the 15th kno...

Friday, June 08, 2012

Do you remember the Hatfield-McCoy Feud caused by Von Hippel-Lindau

I saw something on this the other day, funny how it seems to still be a myth. Anyway I wanted to do a different post because I wante...

Who needs a spleen?

The next stage in the saga of the family's health. Dad is having surgery in July; that is of course if that makes sense and as yet we ...

Monday, May 10, 2010

the old fashioned way

This was how it worked the time before last

Friday, July 28, 2006

You don’t always get what you want

MARCH Every one of these changes has left its mark This time of year is bizarre. Ten years ago my brother died. Ten years ago I noti...

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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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