Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label VHL; spine. Show all posts

Showing posts with label VHL; spine. Show all posts

Friday, July 20, 2018

Love and hate

I went to a Pilates class yesterday, the day before I felt poorly, in the class I felt oddly young and old at the same time. The women doing...

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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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