Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label brother. Show all posts
Showing posts with label brother. Show all posts
Thursday, March 15, 2018

Hard to fall asleep on a day like today

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Two posts on one day. I'm feeling loved, unsettled, sad and proud. I should go to bed. I should be very normal. I should try to get o...

Alive as long as he's been dead

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My brother. 22 years. Which of course means that from now on he's been dead longer than he was ever alive. What should I feel?
Monday, November 13, 2017

I just can't get to sleep

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I'm not going to post this straight away. But I can't sleep. I've let someone I care tremendously about know this blog exists a...
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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