Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label counselling. Show all posts
Showing posts with label counselling. Show all posts
Saturday, August 22, 2015

Counselling

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I've asked for some. At first I thought it was a sign of weakness, despite giving others the advice to get some but it has been along t...
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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