Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label friendship. Show all posts
Showing posts with label friendship. Show all posts
Saturday, April 21, 2018

The morning after the night before.

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My friend has gone back to the UK. I cried at the airport. A definite feeling of grief today. I cried a few more times after that too. I m...
Saturday, March 24, 2018

An ordinary day

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Today was so simple. It was an extraordinary normal day. Being a small part of lovely people's lives is such an honour. Lucky me. I...
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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