Sunday, August 22, 2010

Sharing

›
nothing has changed everything is normal my normal 

Being normal

›
I've spent a week with my dad and his disabilities. We do all take so much for granted, such a cliché now but when I think of what used ...
Monday, August 09, 2010

Fit and well

›
The scar on my forehead is from when I tripped as a child so not VHL related. 
Thursday, June 10, 2010

My baby

›
My wonderful VHL free little one. It is a good thing to be able to say, it is almost unbelievable 
Monday, May 10, 2010

My VHL free baby girl

›

the old fashioned way

›
This was how it worked the time before last

Dad and falling

›
It went well, but he fell over and now his face is quite a mess. Small but significant up-date Falling over happens a lot when you don...
Tuesday, April 20, 2010

Gamma Knife - coming up

›
it will be a week on Friday... The magic of sorting out a brain tumour without cutting open a skull. Takes about 20mins. I can't be the ...
Saturday, April 03, 2010

gamma knife

›
Dad's going to have to have some gamma knife done... watch this space
Friday, January 15, 2010

My Little One

›
Isn't she wonderful?
Tuesday, November 03, 2009

No new nasties

›
It is a pleasure to say that I've just got back from my annual review and I'm able to happily ignore the twinge I had and the always...
Thursday, September 24, 2009

eyes and eyes but no one is looking

›
just that I notice it and I notice it every day. Nothing will change I suppose. ummm
Friday, September 18, 2009

contradiction

›
I watch 'Ugly Betty' I know but it is escapism. I have hiccups right now and have decided to watch ‘House’. This is my Friday night ...
Wednesday, August 12, 2009

We love the NHS

›
If you do, and you tweet, please join the #welovetheNHS tweet spectacular my eye tumour is ok, my dad is ok things are ok
Monday, July 20, 2009

More news

›
A ridiculous week. Firstly my daughter turned 2, a big event for me and her. My eye is going to be fine, yes it bled, no need to do anything...
Tuesday, June 30, 2009

I was right

›
So an afternoon in Moorefields Eye Hospital can confirm that my tumour on my optic nerve has been bleeding. I'm back home and feeling fi...
Sunday, June 28, 2009

eye eye

›
I just left a message with Moorefields eye hospital asking for my man to contact me, because the last few days I've had a dark streak ac...
Wednesday, June 24, 2009

who am I

›
My dad is still alive, and I'm glad of it because maybe he wants to be alive. But his desire to end it all has made me wonder who I am. ...
Tuesday, May 19, 2009

Working Hard

›
I have a new job, well the same job but in a different school and as a result I'm sitting here with very little to do. That's becaus...
Monday, May 18, 2009

running running running

›
My sister plans to run the 2011 London Marathon in aid of VHL. I don't say it enough but she is amazing. Sometimes it is easier to noti...