Friday, February 25, 2011

A note from my sister

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This is what my big sister wrote "I am not what you would call a natural runner or even an enthusiastic one at that, but after experien...
Sunday, January 09, 2011

Happy New Year

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I'm no nearer to a solution for the hole in my macular, one more specialist to see but so far it's has been a resounding - "pro...
Sunday, November 28, 2010

My LIst

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1 Brain 2 spine 1 optic nerve 2 kidney 1 tail of pancreas oh and 1 liver want one anyone?
Thursday, October 14, 2010

Angioma and macular holes

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I saw a second specialist today who said that I have PVT and that the tumour is sticking to the retina and so surgery would be extremely ris...
Sunday, August 22, 2010

Sharing

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nothing has changed everything is normal my normal 

Being normal

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I've spent a week with my dad and his disabilities. We do all take so much for granted, such a cliché now but when I think of what used ...
Monday, August 09, 2010

Fit and well

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The scar on my forehead is from when I tripped as a child so not VHL related. 
Thursday, June 10, 2010

My baby

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My wonderful VHL free little one. It is a good thing to be able to say, it is almost unbelievable 
Monday, May 10, 2010

My VHL free baby girl

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the old fashioned way

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This was how it worked the time before last

Dad and falling

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It went well, but he fell over and now his face is quite a mess. Small but significant up-date Falling over happens a lot when you don...
Tuesday, April 20, 2010

Gamma Knife - coming up

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it will be a week on Friday... The magic of sorting out a brain tumour without cutting open a skull. Takes about 20mins. I can't be the ...
Saturday, April 03, 2010

gamma knife

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Dad's going to have to have some gamma knife done... watch this space
Friday, January 15, 2010

My Little One

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Isn't she wonderful?
Tuesday, November 03, 2009

No new nasties

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It is a pleasure to say that I've just got back from my annual review and I'm able to happily ignore the twinge I had and the always...
Thursday, September 24, 2009

eyes and eyes but no one is looking

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just that I notice it and I notice it every day. Nothing will change I suppose. ummm
Friday, September 18, 2009

contradiction

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I watch 'Ugly Betty' I know but it is escapism. I have hiccups right now and have decided to watch ‘House’. This is my Friday night ...
Wednesday, August 12, 2009

We love the NHS

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If you do, and you tweet, please join the #welovetheNHS tweet spectacular my eye tumour is ok, my dad is ok things are ok
Monday, July 20, 2009

More news

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A ridiculous week. Firstly my daughter turned 2, a big event for me and her. My eye is going to be fine, yes it bled, no need to do anything...
Tuesday, June 30, 2009

I was right

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So an afternoon in Moorefields Eye Hospital can confirm that my tumour on my optic nerve has been bleeding. I'm back home and feeling fi...