Thursday, August 23, 2018

Life is a long game, if you're (un) lucky

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One whole year. It reminded me that I'm in charge of this. This life. This journey. I'm in a state of neutrality right now. I...
Saturday, August 18, 2018

The gaps

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I had an interesting WhatsApp chat with my dad yesterday. I asked him the biggest gap between surgeries. 13 - 30 Not bad. I think those ...
Wednesday, August 15, 2018

My 40th year

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For those of us with VHL each year we make it to a birthday is a victory. We describe ourselves as warriors and so these victories each year...
Thursday, August 09, 2018

Waiting

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Grrr, I'm told the meeting is at the end of August. I'm not feeling very patient
Sunday, July 29, 2018

Self preservation

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Wow, we're not quite back in Blantyre but we're in Malawi. The journey has been rather epic so far, but nothing you can't handle...
Tuesday, July 24, 2018

I dreamt of a spreadsheet

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In my subconscious I'm getting impatient. Last night my dreams were about getting results and a fictional spreadsheet of my tumours and ...
Sunday, July 22, 2018

Sister

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I knew coming home to Norfolk would be the hardest bit of the return trip. I don't feel like I belong sometimes but I fit here. The pl...
Friday, July 20, 2018

Love and hate

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I went to a Pilates class yesterday, the day before I felt poorly, in the class I felt oddly young and old at the same time. The women doing...
Sunday, July 15, 2018

My London

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I'm in my London. My London smells, it's crowded and busy, it's got lots of people, it's got fashion and noise. It's got...
Sunday, July 08, 2018

As we travel home

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I've experienced a decent range of emotions about coming home. My time in Malawi is in no way over and it was a reluctant choice to trav...
Thursday, July 05, 2018

Ssshh, don't tell my mum

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It turns out the medical insurance I had was not fit for purpose. Having filled in the form for a much 'better' one, I'm still ...
Sunday, July 01, 2018

The simple pleasures in life

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This morning I am content and happy. I'm in bed, a lie in, reading, blogging and drinking a cup of tea that my husband just brought me. ...
Saturday, June 23, 2018

Someone else...

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My mum is due to have an operation. A full knee replacement. I don't know much more at the moment but from my dad and sister it's c...
Wednesday, June 20, 2018

Medical insurance

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It's one of the reasons I've thought I couldn't ever be anywhere but the UK. Now I find myself filling in forms, my husband doin...
Sunday, June 17, 2018

Saint

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I was called a saint yesterday. It's because this weekend I'm looking after 4 children, I'm responsible for my pals 3 children. ...
Saturday, May 26, 2018

The mundane truth

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I'm drinking wine, on my own. At university that was a no no. Now it's very normal. I've had a very mundane day. And I've l...
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Saturday, May 19, 2018

Things are different... I shall add as we go along

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A question I hear in my head often is, why did we come here. The truth is always:  "many reasons." Each one of those reasons woul...
Wednesday, May 16, 2018

Poorly but fine

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I've got a nasty cold. I'm in bed but I can't sleep. I have a temperature. But I'm kind of fine. It's odd feeling ill ...
Friday, May 11, 2018

Each time I cough

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I used to hiccup. Now I cough. Funny. Both involuntary one quaint the other a potential for germs. However I now do the later more. So...
Wednesday, May 09, 2018

What makes me happy?

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On Monday I went to first Zumba class. Unlike my ridiculously fit and capable friend, who bounced the whole way through, I look it fairly ea...