Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Friday, July 28, 2006

I wish

I wish someone could fix my dad

diary of a genetic defect at 12:08 pm

1 comment:

Beverly8:28 pm
...and I just wish someone could fix my boy...

Mom of a 17 year old VHLer
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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