Having VHL means that I often have to have tests on my body. I was reading through a fellow VHLer's blog and was amused by the way they felt about tests. The most unpleasant one was Venus sampling, but that’s mainly because they shaved half of my pubic hair and cut into my groin. The Dr was a complete arse and I’ve vowed to never let that happen to me again. I’ve had a lot of scans, MIR, CAT, something with radiation, bog standard x-rays and probably more that I don't even know about. The most humorous is when you have the eye test with the dye. The first time I had this test the dye made me feel sick and that’s because they gave me the same amount as they gave my dad. I was about 14 at the time. We left Addenbrookes and stopped off at a Happy Eater, this was in the days of the yellow paintwork; my skin was so full of the dye that I was a very similar colour, my blonde hair looked green against it. When weeing later on it was luminous yellow. My dad and brother had the same colour wee which was not only a shock for them but also the man who happened to be stood next then in the men’s urinal.
When I had the dye test done more recently I called my flat mates to have a look at my wee afterwards. They were really grateful.
I read through what you've posted up to now and am just blown away. Most of us think that our lives are full of hardships and challenges but it's nothing compared to what people like yourself face. What you wrote is really touching and thought provoking. Keep it up.
ReplyDeleteThank you for the comment in my blog :). Do you mind explaining what VHL stands for? I'm unfamiliar with it.
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