my baby girl

i know it is sideways, you'll have to turn your head. She is on her granny's lap.

radio silence

It has been a while and this is partly due to me now being the proud mum. As far as VHL is concerned I have been given the all clear for another year, my tumours are the same as they were before. The VHL hits hardest where my dad is concerned, he has decided to retire through ill health and this disappoints me. I'm sad that he isn't going to carry on but I do understand why. He seems more angry than ever before, his gentle nature is being destroyed by the disabilities he is now facing. I could go on but my baby is about to eat a big bit of paper!