I saw something on this the other day, funny how it seems to
still be a myth.
Anyway I wanted to do a different post because I wanted to
talk about me!
I've been using Facebook forum on VHL a bit too much and I
wondered if I should, my family are connected to that and then I remembered I
could express myself here and not worry but hope - I don't know why - that some
people will read it.
I was having a drink with a friends last night and we were
talking about lots of things but VHL came up and she said she never thinks of
it when she thinks of me. I was really pleased. I hate the idea that all I am
is my genetic disorder.
I am not.
I bloody hate it all the same. I feel like a time bomb.
When will I next need surgery and when will it happen?
GRRRRRRRRRRRRR
Von Hippel Lindau is horrible.
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