I got a letter in the post today, 5 months after my clinic and I got my VHL list through.
I love reading my list.
You might think that strange but for me it is a badge of honour. It represents my struggle and as today I read it, in my kitchen, busy rushing around to empty and immediately fill my dishwasher, make tea, clean the kitchen up a bit, put tissues in my school bag (I've run out as I have a cold) entertain my child and get her to bring her washing downstairs and put on a load, I read it and felt proud.
I'm proud of what I've recovered from and aware that some of the buggers on the list will need intervention one day.
Pleased, of course that only one of them has grown.
And I'm proud enough of it to share it... I think sometimes people forget how great I am! The lack of modesty in this prickles me slightly but it is true. I know some strong people, mainly women.
I want to raise a strong woman.
So I put a picture of my list on Facebook. I want people I know to see it and think, fuck me that's a lot of tumours. She's amazing.
Because I am a VHL warrior.
Hear me roar.
I love reading my list.
You might think that strange but for me it is a badge of honour. It represents my struggle and as today I read it, in my kitchen, busy rushing around to empty and immediately fill my dishwasher, make tea, clean the kitchen up a bit, put tissues in my school bag (I've run out as I have a cold) entertain my child and get her to bring her washing downstairs and put on a load, I read it and felt proud.
I'm proud of what I've recovered from and aware that some of the buggers on the list will need intervention one day.
Pleased, of course that only one of them has grown.
And I'm proud enough of it to share it... I think sometimes people forget how great I am! The lack of modesty in this prickles me slightly but it is true. I know some strong people, mainly women.
I want to raise a strong woman.
So I put a picture of my list on Facebook. I want people I know to see it and think, fuck me that's a lot of tumours. She's amazing.
Because I am a VHL warrior.
Hear me roar.
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