An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
Thursday, May 30, 2019
Tales of the Unexpected
I was not ready!
My head is still spinning but I have a stay of execution. I could bore you with the explanation but I'm exhausted from explaining. The long and short of it is no surgery, for now and maybe now for a long time.
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