A VHL warrior the whole way and beyond. His body won't immediately save someone else. Not straight away, but maybe one day and maybe me. It's on its way to a research hospital and they were, so I'm told, respectfully delighted. The oldest VHL one they have had.
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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