An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
Sunday, May 23, 2021
outliving
My mum will often comment on the age she needed us to live to, older than her nephew who died at age 4. (I think)
When my brother died my milestone was 22, next came my dad's mum's age, which I guessed at, 30ish. Then the age was given as the median age, 53, so that one has become my next and now a new one to beat. 72.
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