Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Sunday, August 15, 2021

Tonight I watched a new tribute to my dad.

It was beautiful.

It was real.

It was important.

diary of a genetic defect at 9:37 pm

diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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