to go with my mum, it's not a place I feel I belong anymore. I get it and I am grateful for what the church, and by that I mean some of its people, have given me over the years.
I still pray and I still feel a connection but I don't know if that's ingrained habit or faith and perhaps both.
I am saying thank you today and asking for guidance.
the simplicity of it
all stable... the best news someone with VHL can get I think
the immediate telling to all the folks I know care... and then I wonder how much I should share. I'm rare. I told twitter. I thought I might be able to build more of a community on there - not so much. Be told not to minimise and misunderstood at times. I don't think they see more than the snapshot - much like some people in my real life.
And of course today some of that crash you feel after the 'good news' The letting go of the tension you hadn't fully realised you had been holding onto.
And then... well then the next scan right... in less than 6 months this time because I had to wait so long for this 'as near to all clear' as I get
My daughter asked me this morning 'what would you do if they told you it had all gone?'
'get them to check again.'
I am good at it, distracting myself but my goodness this wait is very long. Scan in July and still no definite answers and information.
I feel like I'll be due another scan before I know what this one really means. Hoping it's not 'a little bit late' by then.
Posts
All Comments
