near to all clear

 the simplicity of it

all stable... the best news someone with VHL can get I think

the immediate telling to all the folks I know care... and then I wonder how much I should share. I'm rare. I told twitter. I thought I might be able to build more of a community on there - not so much. Be told not to minimise and misunderstood at times. I don't think they see more than the snapshot  - much like some people in my real life. 

And of course today some of that crash you feel after the 'good news' The letting go of the tension you hadn't fully realised you had been holding onto. 

And then... well then the next scan right... in less than 6 months this time because I had to wait so long for this 'as near to all clear' as I get 

My daughter asked me this morning 'what would you do if they told you it had all gone?' 

'get them to check again.'