An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
Monday, August 11, 2025
recovery update
It's almost 5 weeks. I've done busses and longish car journeys but they do make me ache a lot. I thought I was through the fatigue but have had a couple of days when I'm knackered.
The muscles around my neck ache and hurt and my neck feels like it's cracking. The fizzy thing still happens, it's not unpleasant just a bit strange. It doesn't impact my movement.
I'm less down in mood - started dreaming about being back at work.
No comments:
Post a Comment