Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Showing posts with label NHS; VHL; MRI. Show all posts
Showing posts with label NHS; VHL; MRI. Show all posts
Friday, December 31, 2021

familiar chairs, unfamiliar faces

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I'm sitting in the yellow chairs of the imagining department. It's been like this for a while, the changes and improvements continue...
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About Me and VHL (Von Hippel Lindau)

diary of a genetic defect
I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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