Thursday, March 30, 2023

Passion fruit

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 I can leave Malawi content as I have harvested some passion fruit.  This little moment matters to me, not leaving something undone.  I don...
Saturday, March 18, 2023

Searching for what should make me happy

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 I am increasingly relying on fate and not sensible planning. I have applied for a maternity cover - the Headteacher was very nice but I got...
Thursday, March 16, 2023

adults think they know everything

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When I was about 18 I went to a odd hotel in Great Yarmouth. It was too see if I deserved an arts sponsorship to get to arts school.  I didn...
Sunday, March 05, 2023

home is where the heart is

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 I am home, in the Warm Heart of Africa. It certainly felt odd. My heart is split and that might never change. I understand why I'm feel...
Saturday, February 25, 2023

The magic cure isn't as magic as I thought

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 The last few days I've seen posts from people who have not had the miracle cure from the drug that they and the rest of us were expecti...
Friday, February 24, 2023

last chance - well it's not but it feels like it

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When the fates allow it I will look back and use these last few weeks as a lesson in keeping on. I feel so utterly supported by so many peop...
Tuesday, February 21, 2023

harder than I thought

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 I've been very tearful today and finally had a good cry.  Simply put, although I know it's the right thing to do for so many reason...
Saturday, February 11, 2023

hydrocortison

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 Humph I need more than I brought with me and it's very annoying. In Malawi I can just go and buy it. I don't think this is necessar...
Monday, February 06, 2023

flying home

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I keep having to remind myself this is real. It doesn't feel it. Like a crap prank. I don't know if I believe this is happening and ...
Saturday, January 28, 2023

Genetic lesson in ethics

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 There are moments in your life that hit harder than others and then, like any other kind of grief, it tends to fade or at least hits less o...
Friday, January 20, 2023

whiskey

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I'm watching a zombie apocalypse series. I don't like them. I don't like to think how easily so many people you know and probabl...
Thursday, January 19, 2023

prediction

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 someone I know and respect has begun to read this blog. Exciting and a little unnerving. In response to his comment via email I  thought, w...
Friday, January 13, 2023

when you're sphished

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This evening I'm shpishhed It is fun It is ok It is fun
Sunday, January 01, 2023

didn't bother

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I went to bed early, I didn't bother with it. I am feeling low and worried about the year ahead. I haven't been able to book my MRI ...
Tuesday, December 20, 2022

Those comments from that man

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I have been very troubled by JCs writing in The Sun. I immediately got the GoT reference. And that's because I found that scene one of t...
Tuesday, December 13, 2022

how much to declare

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 I'm applying for jobs. There is always the confidential section. Last time I was applying in the UK I ended up having to disclose to th...
Wednesday, November 16, 2022

not VHL a different disability

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I recently explained to teacher 'if you're dyslexic, it's always about dyslexia.' I don't know if he got it.  I'm hi...
Saturday, November 12, 2022

being with fellow know how it is peeps

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 I had pizza with a pal last night who just gets it. She and I both have a disease that means results day is always more of a  - can I live ...
Tuesday, November 08, 2022

cat's out the bag

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 the news that we are leaving hasn't gone down well. Which is nice. Some tears and some expressions of sadness. Not all mine 
Sunday, November 06, 2022

Perfect day

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 toady I got up and made myself a cup of tea, and then I finished a jigsaw, made a fried egg sandwich and then did a bit of tidying up. I so...