Diary of a Genetic Defect, VHL, Von Hippel Lindau

An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.

Sunday, January 21, 2007

Just to say that next week I'm in twice for baby things. I'll let you know how it goes.

diary of a genetic defect at 10:08 am

Beverly5:48 pm
Hope all is well. Lots of prayers from our house.
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diary of a genetic defect: I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?

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