For those of us with VHL each year we make it to a birthday is a victory. We describe ourselves as warriors and so these victories each year matter, one step closer to winning the war.
It was less then 10 years ago that I received a letter telling me my life expectancy. 52. I have screening.
This wasn't a predictor of quality of life, just the years survived. My father will be 70 next year. He survives every day. I question how much he lives.
This my 40th is a big deal, 50 will be too. 53 is the year I intend on having the mother of all parties.
But more than that I fully intend to live my life. I intend to be, love, laugh, hold others.
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