Saturday, September 30, 2006

Dad Update (An email)

›
Hello everybody Just to keep you in the know. Dad spent last week at hospital again and was thoroughly tested, prodded about and medica...
1 comment:
Wednesday, September 20, 2006

Beauty Queen

›
Recently I was at an event, not my sisters wedding but a big party type thing. Now as big headed as this is going to make me sound I looked ...
2 comments:
Tuesday, August 29, 2006

My Big Toe

›
My big toe is tingly. I’m hoping that this is due to something like an in-growing toenail. The problem is that I know my dad’s toes do ting...
6 comments:
Wednesday, August 02, 2006

Aluminous Yellow

›
Having VHL means that I often have to have tests on my body. I was reading through a fellow VHLer's blog and was amused by the way they ...
2 comments:
Monday, July 31, 2006

Writing a will

›
I wrote a will when I was 17.  It wasn’t a fully legal one with a solicitor or anything like that but I was thinking that now I’m a...
Friday, July 28, 2006

Opticians

›
It isn’t all bad then, this disease of mine. I booked an opticians appointment at a well known chain of opticians, not that I think that...

An email to people

›
Hi all I thought you might like to know the latest on dad. He has spent the week in St Barts and has had lots of tests and scans, it’s...

I wish

›
I wish someone could fix my dad
1 comment:

20th May 2006

›
An odd week coming up, my dad is in hospital all week and I’m going to visit him everyday. Tonight I walked onto the ward.  You know th...

You don’t always get what you want

›
MARCH Every one of these changes has left its mark This time of year is bizarre. Ten years ago my brother died. Ten years ago I noti...

Can't sleep

›
I should be asleep but I can’t, I’m thinking of my non child, she is just like me but better, she has all the best bits of me and all the be...

24th February 2006

›
Apparently we are young to adopt. I want to take my own risk; I want to have a baby. Partly because the new child laws make it almost imp...

19th February 2006

›
I’ve been on holiday (half term) and I’m feeling refreshed. Being at home brings back memories of my brother. He would have been 32 yesterd...

50/50

›
It's a 50% chance of passing on my disease to any child I/we have Would you take the chance?
1 comment:

A history lesson

›
It occurred to me that a context may be needed and although I don’t intend to put my name on here if you do know me well then you’ll figur...

Positivity

›
For the record I am a positive person and I feel that on balance I am incredibly blessed, I have so many wonderful things in my life, I am...

Diary of a Genetic defect

›
The story so far I’m creating this blog because when I was sitting next to my dad a few months ago now in St Barts Hospital, he was ha...