Thursday, May 17, 2007

It's all hospitals

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It was a hectic week but dad is home now. Although he seems a little depressed; I think he expected to be better than he is by now. His bal...
1 comment:
Wednesday, May 02, 2007

In and Out

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Well not quite out yet but my dad has been in hospital and the tumour is out; all of it. He is sitting up this morning, has had breakfast an...
2 comments:
Monday, April 16, 2007

More thoughts

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It can bring you closer. My sister and I have had an interesting relationship; we love each other but recently we have become closer. It w...
1 comment:
Sunday, April 15, 2007

Dad Update - email to people

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Hello everyone. Not the best news but the expected news nonetheless. Dad met with Mr S and Prof C on Friday and the results of the scan s...
1 comment:
Tuesday, April 10, 2007

Hatfield-McCoy Feud caused by Von Hippel-Lindau - my arse

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There has been coverage of this story for a few days now. I'm really surprised by the number pf people who are interested in the story. ...
1 comment:

Genetic testing

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You know, it is an odd phenomenon. I was thinking about the implication. We said no to the idea of screening for VHL on our little girl and ...
2 comments:
Sunday, April 01, 2007

The Real VHL

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For my partner this is the first real journey into the reality of VHL. We have been together 6 years and he has heard the word tumour so may...
1 comment:
Saturday, March 31, 2007

Email to people

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Prayers and positive thoughts needed. Hey hey Some not so good news today. Dad has got a letter, it looks like it is a brain tumou...

Today I feel sad

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My dad said ‘hello sweetheart, where are you?’ ‘You’ve got some results haven’t you?’ ‘Yes, are you with anyone?’ ‘Yes.’ ‘Right.’ H...
1 comment:
Thursday, March 22, 2007

Week 22

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All is well as far as the baby is concerned. She has started to move about and I can feel her, and yes it is a She. I'm really enjoying ...
1 comment:
Tuesday, February 27, 2007

Breast Feeding

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As some of you avid readers may know, as I don’t have any adrenal glands I have to take steroids three times a day as replacement therapy (...
2 comments:
Sunday, February 25, 2007

e-mail about dad

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hi all just to let you know the latest, dad had an appointment with prof C tonight re balance and general wobbliness. The good news is prof ...
2 comments:
Thursday, February 08, 2007

wobbly father

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My parents came this weekend, it was great to see them. Each time my dad seems more wobbly. The radiotherapy took its toll and there isn...
2 comments:
Wednesday, January 31, 2007

Another Day Curve

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Not much to report, feeling healthy but tired. Just making sure I keep you posted, the loyal few that is. Everything is going according to ...
2 comments:
Sunday, January 21, 2007

a few days at hospital

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Just to say that next week I'm in twice for baby things. I'll let you know how it goes.
1 comment:
Saturday, January 06, 2007

Day Curve

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I had to get up very early, it should have been my first day back at school but I had a Day Curve. That’s when you have your blood taken thr...
3 comments:

Eye Eye

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I had my annual review for my eyes at the end of December. It was a warm day for December. My partner came with me even though I could have ...
1 comment:
Sunday, December 10, 2006

Still Pregnant

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But I’m actually feeling afraid that it won’t happen. Each time I go to the toilet I check the paper to see if my period has started and I t...
5 comments:
Sunday, November 26, 2006

Doing the right thing

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We are so excited that we haven’t followed convention and we have told everyone. It is so early but you know what I’m having a baby and if...
1 comment:
Saturday, November 25, 2006

To Plan or not to Plan

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H ow quickly things change. I’m pregnant! Something I always hoped and prayed would happen. All those times I quietly swallowed tears whe...