Monday, September 03, 2007

new mum

›
I'm finding it hard to find time to do this. My mind isn't on VHL very much. Dad goes back into hospital next week for further tes...
3 comments:
Monday, July 23, 2007

She's here

›
She has arrived. Last week a perfect day in July at 2:45 pm our time. 7lb 4oz and she is wonderful I'm so happy. I had an interesting...
3 comments:
Wednesday, July 04, 2007

I HATE IT

›
I hate it, I hate it I hate it. It creeps in and nibbles away at the perfectly good life you live. Why the rant well VHL does it’s bloody tr...
2 comments:
Monday, July 02, 2007

Vulnerable

›
He looked so vulnerable. He was at my gate, stick in had with a list to the right; his hat on his head and mum dashing around in the backgro...
2 comments:
Friday, June 01, 2007

Mum to be

›
The best thing about having this blog is making contact with other people, well ‘Steven’s Journey’ really. But it makes me feel less isolate...
7 comments:
Thursday, May 17, 2007

It's all hospitals

›
It was a hectic week but dad is home now. Although he seems a little depressed; I think he expected to be better than he is by now. His bal...
1 comment:
Wednesday, May 02, 2007

In and Out

›
Well not quite out yet but my dad has been in hospital and the tumour is out; all of it. He is sitting up this morning, has had breakfast an...
2 comments:
Monday, April 16, 2007

More thoughts

›
It can bring you closer. My sister and I have had an interesting relationship; we love each other but recently we have become closer. It w...
1 comment:
Sunday, April 15, 2007

Dad Update - email to people

›
Hello everyone. Not the best news but the expected news nonetheless. Dad met with Mr S and Prof C on Friday and the results of the scan s...
1 comment:
Tuesday, April 10, 2007

Hatfield-McCoy Feud caused by Von Hippel-Lindau - my arse

›
There has been coverage of this story for a few days now. I'm really surprised by the number pf people who are interested in the story. ...
1 comment:

Genetic testing

›
You know, it is an odd phenomenon. I was thinking about the implication. We said no to the idea of screening for VHL on our little girl and ...
2 comments:
Sunday, April 01, 2007

The Real VHL

›
For my partner this is the first real journey into the reality of VHL. We have been together 6 years and he has heard the word tumour so may...
1 comment:
Saturday, March 31, 2007

Email to people

›
Prayers and positive thoughts needed. Hey hey Some not so good news today. Dad has got a letter, it looks like it is a brain tumou...

Today I feel sad

›
My dad said ‘hello sweetheart, where are you?’ ‘You’ve got some results haven’t you?’ ‘Yes, are you with anyone?’ ‘Yes.’ ‘Right.’ H...
1 comment:
Thursday, March 22, 2007

Week 22

›
All is well as far as the baby is concerned. She has started to move about and I can feel her, and yes it is a She. I'm really enjoying ...
1 comment:
Tuesday, February 27, 2007

Breast Feeding

›
As some of you avid readers may know, as I don’t have any adrenal glands I have to take steroids three times a day as replacement therapy (...
2 comments:
Sunday, February 25, 2007

e-mail about dad

›
hi all just to let you know the latest, dad had an appointment with prof C tonight re balance and general wobbliness. The good news is prof ...
2 comments:
Thursday, February 08, 2007

wobbly father

›
My parents came this weekend, it was great to see them. Each time my dad seems more wobbly. The radiotherapy took its toll and there isn...
2 comments:
Wednesday, January 31, 2007

Another Day Curve

›
Not much to report, feeling healthy but tired. Just making sure I keep you posted, the loyal few that is. Everything is going according to ...
2 comments:
Sunday, January 21, 2007

a few days at hospital

›
Just to say that next week I'm in twice for baby things. I'll let you know how it goes.
1 comment: