Tuesday, May 19, 2009

Working Hard

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I have a new job, well the same job but in a different school and as a result I'm sitting here with very little to do. That's becaus...
Monday, May 18, 2009

running running running

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My sister plans to run the 2011 London Marathon in aid of VHL. I don't say it enough but she is amazing. Sometimes it is easier to noti...
Saturday, May 02, 2009

A strange week

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I feel so sad and a bit worn out. I think I may have under played how bad my dad'sa health has become perhaps not. What I haven't sa...
Sunday, January 11, 2009

A weekend home

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I spent a weekend at home, we had a little Christmas because now I'm a mum I have to share her around. It was easier this time because s...
Friday, January 02, 2009

My beautiful girl

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She fills me with joy 
Friday, November 07, 2008

Kidney

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It was that time of year again, I expected to wait a long time to be seen but I wasn't worried because I'd had a letter, nothing new...
Tuesday, September 02, 2008

my turn?

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Tomorrow I have my annual MRI scan, it is usually a long one. I feel like this time I might not get away with the - I was getting used to ...
Sunday, August 24, 2008

Crosswords

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My Dad is in again, it feels like he has been like this for so long but really it is only 18months and it is steadily getting worse. So much...
Friday, May 30, 2008

caring

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The last three weeks have been difficult. I’ve been to the various hospitals that plan to look after my dad and I’ve cared. I hope and pray ...

It ends here

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I remember when I was a teenager and first embarking on a serious sexual relationship when I realised (or was reminded by my parents) that g...
2 comments:
Wednesday, May 14, 2008

So ugly

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It has been a while and VHL has grown so ugly. My father has been in and out of hospital and each time it is worse and more horrid. No on...
1 comment:
Friday, January 25, 2008

my baby girl

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i know it is sideways, you'll have to turn your head. She is on her granny's lap.
1 comment:

radio silence

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It has been a while and this is partly due to me now being the proud mum. As far as VHL is concerned I have been given the all clear for ano...
Monday, September 03, 2007

new mum

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I'm finding it hard to find time to do this. My mind isn't on VHL very much. Dad goes back into hospital next week for further tes...
3 comments:
Monday, July 23, 2007

She's here

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She has arrived. Last week a perfect day in July at 2:45 pm our time. 7lb 4oz and she is wonderful I'm so happy. I had an interesting...
3 comments:
Wednesday, July 04, 2007

I HATE IT

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I hate it, I hate it I hate it. It creeps in and nibbles away at the perfectly good life you live. Why the rant well VHL does it’s bloody tr...
2 comments:
Monday, July 02, 2007

Vulnerable

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He looked so vulnerable. He was at my gate, stick in had with a list to the right; his hat on his head and mum dashing around in the backgro...
2 comments:
Friday, June 01, 2007

Mum to be

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The best thing about having this blog is making contact with other people, well ‘Steven’s Journey’ really. But it makes me feel less isolate...
7 comments:
Thursday, May 17, 2007

It's all hospitals

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It was a hectic week but dad is home now. Although he seems a little depressed; I think he expected to be better than he is by now. His bal...
1 comment:
Wednesday, May 02, 2007

In and Out

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Well not quite out yet but my dad has been in hospital and the tumour is out; all of it. He is sitting up this morning, has had breakfast an...
2 comments: