Friday, July 19, 2019

Another small step

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Yesterday I had my words published on line. A small article in a small charitable publication. I shared it with various people. A step I wo...
Monday, July 15, 2019

TV guide

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There are often differences, in generation and place. And there are three memories of similarity too. All rolled up into shared experiences ...
Thursday, July 11, 2019

The importance of a day

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Today is the last day, so is tomorrow. The day after will be too. And the next one. The last day means something. As a teacher, I repeat...
Wednesday, July 10, 2019

4 years

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It seems so long ago, but looking back it was roughly 4 years ago when I felt poorly enough to tell a Dr and a Dr admitted me into a hospita...
Friday, June 28, 2019

Belonging

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I think it's part of the human condition to want to belong. An intriguing side effect of my step into going public, slowly, cautiously i...
Tuesday, June 25, 2019

a story about one of my hemangioblastomas

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The last blog post I made before being admitted to hospital for the hemangioblastoma was about 3 days before I went in. I got through that...
Friday, June 21, 2019

I've gone on Twitter

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I have a short bucket list these days, I have achieved many of my ambitions and there isn't much left that I think I have a huge amount ...
Friday, June 14, 2019

The honour

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This week I've been blessed to be back in the arms of my husband and being able to hold my baby girl, who is almost as tall as me now. ...
Monday, June 10, 2019

Returning

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Returning sooner than expected and it has been a beautiful thing. I haven't seen or felt a single moment of resentment or doubt, just ...
Wednesday, June 05, 2019

The thing with wheelchairs

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It's so easy to forget the mountains he climbs each day. As an abled bodied person most people don't see them. Today, in the rain...
Monday, June 03, 2019

The room of my childhood

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We moved to this house when I was about 8 I think, this wasn't my room straight away, my big sister had to move out before I got it. B...
Thursday, May 30, 2019

Just a tiny drop of milk

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I've been making my dad tea for over 30 years. He knows I know how he takes it. Today I asked if he wanted a cup of tea and he said ...

Tales of the Unexpected

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I was not ready! My head is still spinning but I have a stay of execution. I could bore you with the explanation but I'm exhausted fro...

If I die before I wake

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Now I lay me down to sleep. I pray the Lord my soul to keep. If I should die before I wake, I pray to God my soul to take. If I should l...

Doing some prep...

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I'm off to he VHL clinic today. I'm preparing for it in the way I've done for years. Reminding myself of the names of staff I...
Friday, May 24, 2019

A time to cry

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On a day I've held back tears, not because there is shame in them, but because I needed to keep stepping forward, I needed to feel I cou...
Tuesday, May 21, 2019

I'm one of them

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Today I said this Speech wise, every moment of life is worth forgetting and remembering. You get to choose and with each step you take you ...
Monday, May 13, 2019

Doing what you love

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Last week we hosted a 'I'm going away for a bit but I'll be back' party It summed up so much about what I love in life. P...
Tuesday, May 07, 2019

How many times can you die?

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I sent an email yesterday to my work colleagues. I was my usual matter of fact, this is what this is, self. What occurred to me, was the fr...
Sunday, April 28, 2019

Mortality and immortality

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Once you really know one you can't forgive the other. I've been acutely aware of my mortality for most of my life, which seems to ...