Saturday, September 21, 2019

Cancer of the elbow

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I know I'm not the only one, but every time my body does something unusual or different I imagine the worst. Last night in the comfort ...
Thursday, September 19, 2019

Knowing your surgical anniversary

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I don't, well only one of them. The one that meant my baby girl came screaming healthily into this world. That's the only one. I...
Monday, September 16, 2019

Having a cold

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I have had a cold, it lasted a week and I was so very grumpy about it. I'm not good when I have a cold, it irritates me so much. I get ...
Thursday, September 05, 2019

Fear and uncertainty

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In the UK we are all experiencing a prolonged time of uncertainty and waiting. What will happen, what will it mean and when. Most people f...
Friday, August 23, 2019

'I love you' doesn't even touch the sides

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I am very lucky to have true and real friends. I feel loved and supported in ways that are hard to express and 'I love you' doesn...
Wednesday, August 21, 2019

Fragility

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I visited my uncle this week, he has moved into a new home, much nearer one of his children. He has never been a strong looking man, a small...
Friday, August 16, 2019

Holy day of obligation

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My birthday went well, I stuck to my resolve and it felt good. I went to mass, and as uneventful as that used to be, this time I bumped int...
Thursday, August 15, 2019

More wheelchair experience

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I've learnt not to walk by his side now, one squashed foot later and I know he needs more space than last time. Wheely bins on pavemen...
Friday, August 09, 2019

Going back to my original home

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Not tomorrow, but the day after I go home. The original one, well nearly. I had a very happy childhood, I don't have any bad memories...
Thursday, August 08, 2019

Reaching out and making connections

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Sometimes it doesn't feel like reading about other people in the same situation will help. However, when they understand, are strong and...
Wednesday, August 07, 2019

time and choices

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This is the long holiday, a time to catch up and spend time with people.

Understanding the time line

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We've spent time catching up - it's a lovely phrase and a lovely thing to do. Sitting with family, making sure we all know the main ...
Thursday, August 01, 2019

Vision Express

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They mean what they say, into a small room three hi-tech machines and within 15 minuets of arriving I've have 4 eye tests to a level of ...
Friday, July 19, 2019

Another small step

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Yesterday I had my words published on line. A small article in a small charitable publication. I shared it with various people. A step I wo...
Monday, July 15, 2019

TV guide

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There are often differences, in generation and place. And there are three memories of similarity too. All rolled up into shared experiences ...
Thursday, July 11, 2019

The importance of a day

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Today is the last day, so is tomorrow. The day after will be too. And the next one. The last day means something. As a teacher, I repeat...
Wednesday, July 10, 2019

4 years

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It seems so long ago, but looking back it was roughly 4 years ago when I felt poorly enough to tell a Dr and a Dr admitted me into a hospita...
Friday, June 28, 2019

Belonging

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I think it's part of the human condition to want to belong. An intriguing side effect of my step into going public, slowly, cautiously i...
Tuesday, June 25, 2019

a story about one of my hemangioblastomas

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The last blog post I made before being admitted to hospital for the hemangioblastoma was about 3 days before I went in. I got through that...
Friday, June 21, 2019

I've gone on Twitter

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I have a short bucket list these days, I have achieved many of my ambitions and there isn't much left that I think I have a huge amount ...