Waiting on the way I'll feel in September
Waiting on the need to feel like we made the right choice.
I'm filling up my time.
Being back feels hard when I remember we're here now.
It's done.
I'm here.
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An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
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About Me and VHL (Von Hippel Lindau)
- diary of a genetic defect
- I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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