Friday, April 27, 2018

I feel so happy

A brilliant night, an event that I helped organise and it was superb. I was happy in every part of me. Well almost.
I watched my daughter and loved her. I enjoyed myself, having found the freedom in dance. I belonged and I was loved in return.
And now I'm in bed with my home the centre of a brilliant party. I'm too tired to stay up. But I'm brimming with pride and satisfaction.
The ever present cloud has a bright silver lining and that's what is shining tonight.

Saturday, April 21, 2018

The morning after the night before.

My friend has gone back to the UK.
I cried at the airport. A definite feeling of grief today. I cried a few more times after that too.
I miss her already.
She's such an amazing person. Beautiful in mind, spirit and all the rest.
It was lovely just having her around gave me the confidence to be a more the me I am in London. I drove more, talked more, listened more, possibly drank a bit more and danced.
I love her.
Oh I miss her

Oh to love yourself

I'm having a lovely time. I'm at a party. I just went to the toilet and saw my face. Not bad
Here I am. A foreigner. But I feel so welcome. And I felt confident and happy.

I had two people by my side who I know love me. I've never been too sure if people do but it's a new feeling to be confident in their love.

The fact my mum and dad love me unconditionally has sustained me. But my self confidence isn't quite as it seems. 


Friday, April 13, 2018

Saw me through the chapter

A colleague is writing a blog. I'm quite jealous because I don't think I can share this in the same way.
She tells of private things and they are of course public now. And so do I. A lot of me wants everyone to read my blog. I imagine it would help people, maybe understand me. And then I wonder if that's even true. The age old, depressingly clichéd question; who am I?
More than a blog
What was hard to read in the blog, just started was the phrase: saw me through the chapter.
Because a life with VHL is not ever going to be a chapter. If only.
And that's just the VHL bit.

Humph

Thursday, April 12, 2018

One gone, one to come

Time with those you love is precious. A not blood, not my side, but great friend non the less, left yesterday.
Tomorrow another friend arrives.
These are both people who when I was in the UK I didn't physically see very often but we put the effort in. And they have certainly put it in by coming here. On their own.
I'm a happy and grateful woman.

In the world of VHL that heading could easily have been about tumours! 


Trying to get the right medical insurance over here is making me appreciate the NHS in ways I hadn't fully recognised.