Saturday, May 06, 2023

telling my story

 I had a fascinating chat with a colleague, we discussed all things kidney. 

I will be pleased when I get back into the scan flow - I am pushing my luck. 

But I'm glad I have, it was the right thing to do

Thursday, May 04, 2023

VHL awareness month

And the month that my dad died in. 
I'm missing knowing he's alive and I'm feeling so deeply sad. 
Right now my life is very unsettled and I feel all sorts of vulnerable. 
So much so I'm annoyed by things I can usually rise above. 
I'm annoyed by things that I really just shouldn't be. 
I'm annoyed I don't get to see him - the healthy well him. 
And I'm so sad. 
I'm lost at sea.