I'm finding it hard to find time to do this. My mind isn't on VHL very much. Dad goes back into hospital next week for further tests. I guess that's why I'm on here again.
I'm very proud.
I'm very tired.
I'm very proud.
I'm very tired.
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An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
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About Me and VHL (Von Hippel Lindau)
- diary of a genetic defect
- I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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3 comments:
She's beautiful!
We've had a little gift for Ayla for several weeks now...hope it fits!
Again, she is beautiful!
What a beautiful baby! I hope all is going well for you. If you feel totally sleep deprived, take heart that it does get better--you will sleep all night again someday! Really tight swaddling worked wonders for my girls.... I am happy for you.
Congratulations :)
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