Bone

 The bone hasn't grown back - rescan in 6 months. It wouldn't mean too much I expect if I didn't want to play sport they way I do. And 6month in the world of VHL can be nothing or everything, most often, more wait and see. 

It was on the phone, not that it makes much difference to the once off the phone and digesting the information you have questions. And now, no longer in contact with the Dr you just muddle through with previous experience, Google and a bit of common sense. None of my questions are big enough for an email to anyone who would know. But they will just sit unanswered until get to ask, it doesn't matter anymore or something supersedes it. 

feeling happy

With disease like this is important to acknowledge the good times. My neck still hurts but not as much. I'm content and enjoying the fact that the last set of scans were as normal as I am going to get. I'm ignoring eye man. 

I'm going to go and do some exercise in a bit. I'll do a bit in the garden later. I want to remember these peaceful days. 

I woke up next to a brilliant, kind and caring man. I'm happy he's my husband. Yesterday we had a lovely day together. Next week we'll go away together. 

I'm a lucky woman and today I am holding that tight.