I'm struck by how much of my past impacts on now. I'm so desperate at times.
So sad in others.
I find myself angry very often.
Near to tears the next.
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An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
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About Me and VHL (Von Hippel Lindau)
- diary of a genetic defect
- I have Von Hippel Lindau disease. Some call it a cancer. I think this is misleading at the moment. I have a few tumours and have had a few operations too. I live with it. What other choice do I have?
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1 comment:
Although I do not have VHL, I empathize with you. My friend, Cari, is diagnosed with VHL and yet she's one of the most positive people I know. Yes she has her struggles, but she's got a lot of fight in her. I put together this video for her. Thought you might find value in it too since it raises awareness for the disease. Hope you enjoy it. I'm staying positive for you!
https://youtu.be/wsDWVCg7OwI
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